Cystic Fibrosis Foundation Georgia Chapter

Last month at NACFC, we heard incredible modulator success stories from people like Lauren Hunsaker. Watch her story below and consider a gift today to support our mission to make CF stand for Cure Found. Make a gift today: fightcf.cff.org/georgia-anf Watch now: Lauren Hunsaker's CFTR Modulator Story - https://youtu.be/sz_--nnfJAs.

We are excited to share this very special and highly requested virtual event featuring Brandi Oxler, DNP (CF Care Center Nurse Practitioner and Transition Coordinator). Brandi will cover a topic that is important but not often talked about-- "How to help children in your family without CF feel special." We are excited for Brandi to share her wisdom on the topic. If you are a CF Parent, Grandparent, or Caregiver, this special event is for you. Join us Thursday, November 5th a...t Noon by registering below. https://afasignup.formstack.com/forms/supportingcfsiblings

Please join us tomorrow at 7 PM as we celebrate the Peachtree Society All-Star Class at A Night With The Stars! You don't want to miss this special evening of fun and recognition, with special guest speaker, Somer Love. Use the link below to join us tomorrow, October 29, at 7 PM ET. https://primetime.bluejeans.com/a2m/live-event/cfzvjddk

This week we are pleased to recognize our Emory Adult and CHOA Pediatric CF Programs, who were recognized at NACFC with an Outstanding Care Center Partner Award, as our Hero of the Week for their incredible work with our CF community! Thank you to the entire team for your dedication and tireless work.

Join us this Thursday for a ghoulishly goofy, SUPER silly, SPOOKY day of Halloween fun! Virtual Costume Parade-- 4:00 P.M. Kids or kids-at-heart, dress up in your Halloween costume and join your CF community for a silly and spooky virtual costume parade! Vote on your favorite costume and the winner will be in for a very special treat. Costume Parade Register here: ... https://afasignup.formstack.com/forms/halloweencostumeparade CF Adult Halloween Happy Hour--- 5:00 p.m. Adults with CF, grab your favorite cider or brew and join us for a Halloween Happy Hour! This is an opportunity to connect with your peers, hang out and get to know one another. Have some Halloween fun and share your spooky stories and your favorite CF tricks or treats! Adults Register here: https://afasignup.formstack.com/forms/cfadulthalloween

This is the last week to sign up for the Holiday Family Sponsor Program! Bring joy to CF families this holiday season by helping purchase gifts for the family. Individual donors, companies and community groups are all invited to join! If you are interested, please carefully read the details linked below and sign up to be a sponsor by October 31st! https://afasignup.formstack.com/forms/holidayfamily2020

A year ago this month, we celebrated the approval of the groundbreaking drug, Trikafta, a highly effective CFTR modulator for individuals who have at least one copy of the F508del mutation. The drug has transformed lives of many people CF and changed the face of the disease forever. But we aren’t done. We will not rest until all people with CF, like Caroline, have the treatments they need and one day, a cure. Read Caroline’s story and learn how your gift could be DOUBLED at this link: https://bit.ly/34rZ9ke

Cystic fibrosis affects more than just the lungsfor many people with CF, it can affect the gastrointestinal tract, too. Tune into the final plenary of NACFC on... Facebook Live Friday, October 23 at 2 p.m. ET, as Steven Freedman, MD, PhD, guides us through the GI aspects of CF, focusing on intestinal, liver, and pancreatic disease, and the exciting new directions in GI as a part of specialized CF care. See more

We are so excited over the coming weeks to recognize our incredible class of Peachtree Society All-Stars. Each of these honorees have risen to the challenge of raising funds and awareness for the CFF for another time and today we are thrilled to introduce Jason Moore. Jason is the President of ProPrudence, but is generous enough to give his spare time to the CFF in honor of his best friend’s son, Grayton. Jason was a standout leader in the 2018 class and has come back this... year with just as much passion for the cause! If you haven’t yet you should follow along in his virtual golf competition raising money, and awareness for CF. A fun fact you may not know about Jason? He was once part of a dance crew!! We bet if you donate to his Peachtree Society fundraiser, you may be able to convince him to show you some signature dance moves : https://finest.cff.org/ptsbattle/Jmo

We will miss being together in person for Chaptacular this year, but you can still support the Nelson Family and the CF Foundation by donating at events.cff.org/chaptacular today! #chaptacular2020

A year ago, the cystic fibrosis community celebrated the approval of Trikafta, a highly effective CFTR modulator for individuals who have at least one copy of t...he F508del mutation. At plenary two of NACFC led by Jennifer Taylor-Cousar, MD, MSc, learn about the amazing progress in our understanding of the benefits of highly effective CFTR modulators. See more

To treat the basic defect in all people with cystic fibrosis and ultimately develop a cure, it is essential that we understand the cells we need to target for t...reatment as well as the strategies for delivering genetic therapies such as gene editing and gene therapy. At the first plenary of NACFC, Brian Davis, PhD, from UTHealth and Maria Limberis, PhD, from University of Pennsylvania, share how we’re laying the foundation for the path to a cure. See more

One year ago today, the FDA announced the approval of Trikafta for many in our community. Today, we celebrate all the milestones that this therapy has made possible for YOU! Show us your #TrikaftaTriumph here! Post a picture and share your story. Let’s lift up our community with the amazing stories they helped make possible. We could not be more excited to celebrate this anniversary today and look toward the future where CF will stand for Cure Found for all people with cystic fibrosis.

Thank you to Scott Mynatt for his steadfast support of the CF Foundation through Insure the Cure. He is a fierce advocate and loyal friend to our entire community! We are grateful to have him as our Hero of the Week!